Mosaic Down syndrome on Mystery Diagnosis Monday April 6

Number of posts : 53 Age : 58 Registration date : 2009-01-27

Hi All
I have been away a while only because I have been completely swamped with our conference planning and World Down Syndrome Day event and of course....LIFE!

But today I have something that I just have to share and I hope you all can watch this! Monday April 6 (that is tomorrow as I write this) one of our families from IMDSA will be on Mystery Diagnosis on the Discovery Health channel at 10pm EST.

If you would like to read Hannah's story, you can go to our website and click on her picture. We also have other stories with late diagnosis there too, but Hannah's is very compelling because this late diagnosis almost cost her her life! http://www.imdsa.org

After the show we will be on Twitter and Facebook discussing the show and answering questions. My twitter is mosaicmoments (trying to still figure out the whole Twitter thing, so I can't guarantee it will be great! lol) You can find me on facebook at Kristy Colvin.

Number of posts : 212 Age : 53 Registration date : 2009-01-27

Thanks, I just set my DVR. There are several Kristy Colvin's on facebook. Which one are you? Smile

Number of posts : 53 Age : 58 Registration date : 2009-01-27

I am not sure how to tell someone how to find me on facebook? If anyone has insight on that, please let me know because it would be very helpful!

I am in the College Station Tx network. Does that help?

If you're friends with me, I'm friends with Kristy. You can look her up in my friends.

Or Kristy, you can go to your profile page on FB and copy and paste the URL and post it here.

Number of posts : 53 Age : 58 Registration date : 2009-01-27

I don't know if this will work, but I copied the URL so hopefully this will work https://www.facebook.com/profile.php?id=570621365&ref=name

Number of posts : 3585 Age : 46 Registration date : 2009-01-26

That worked! I added you!

Number of posts : 6453 Age : 41 Registration date : 2009-01-26

I will have to use the DVR too - I will be watching the men's final BB game about that time and don't want to forget. I will go to Shelley's friends and add you tonight. Thanks.

Kayla

Oh we watch this all the time, will try to remember to record it!!! Thanks for the heads up! And I added you on FB!

A.

Number of posts : 2606 Age : 43 Registration date : 2009-01-27

Kristy, is there any way we could watch it? Is it on youtube maybe?

Number of posts : 53 Age : 58 Registration date : 2009-01-27

They do have podcasts, but I am not sure when this episode will be on there. I do not think they would put it on anytime soon anywhere because it is a new show.

Number of posts : 2606 Age : 43 Registration date : 2009-01-27

Kristy, do you know if there is a podcast we can watch yet?

Number of posts : 53 Age : 58 Registration date : 2009-01-27

I really do not know when they will offer that podcast. You may just have to check every so often with the website or you might can find contact info to ask them when they will do it.

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